We are an ME charity covering the Northern Region, from the Scottish Borders to North Yorkshire and including North-Cumbria. Covering a population of 3 million with an estimated 12,000 people with ME (approx 2000 are young people up to 25years).

Established as an Independent organisation in July 2000 we have around 1300 members (250 young people). Based in Chester le Street and open to callers, we operate Monday to Friday 9am to 5pm. A user led organisation we have a team of 4 employees directed by a management committee of 11, all people with ME or carers of people with ME.

We agree our strategic aims and prioritise our key activities in an inclusive process involving management committee, staff, volunteers and members. This is reviewed on an annual basis. We achieved the quality standard Investor in People in 2003.

We are funded in the main by grant making foundations and trusts. This requires dedicated input to submit funding bids to maintain a high quality service in a very competitive market.

We are proactive in our own fund-raising efforts. 2007 will be the 2nd year of our Tyne Bridge Abseil, and our fourth year in the Great North Run. We estimate an income of around £18,000 from these two very popular events.

All of our income is directed to deliver support, help, information and understanding to people with ME their families and carers, to service providers in health, education and social services, and the general public.

To people with ME their families and carers we offer free membership, a comprehensive information pack on registration, a quarterly newsletter for adults and young people, and opportunities to join us in social get-togethers, local groups, conferences, seminars and workshops.

We offer a dedicated service for our young people and their families, working closely with Paediatricians and education welfare officers. We carry out home visits and advocate on behalf of families where required.

We have played an important and active role in the development of dedicated clinical services for CFS/ME across the region. Four CFS/ME therapy teams are actively seeing patients (500 in the first year of operation). We are working collaboratively with the Northern CFS/ME Clinical Network to secure one more team in the Tees Valley area to complete coverage across the region and give equitable access to all people with ME.

Our Chief Executive is currently Chair the Northern CFS/ME Network, and our own ME North East Chair is the regional patient representative on this board. We have agreed a policy for patient involvement and partnership to ensure services continue to meet the needs and to inform the longer term planning.
ME North East have the organisational infrastructure to gather and collate patient views from its own membership and other groups and in return disseminate information to both patients and the network.

For more detailed information please visit the relevant pages on this site.

If you want to contact us quickly e-mail info@menortheast.org

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DISCLAIMER: Please note – While every effort is made to ensure accuracy of information contained on this website, this cannot be guaranteed. Any information given does not necessarily represent the views of ME North East staff or Trustees. Before embarking on anything different or new, you are advised to discuss this with your Doctor. ME North East is not responsible for any external links.