We are an ME charity covering the Northern Region, from the Scottish Borders to North Yorkshire and including North-Cumbria. Covering a population of 3 million with an estimated 12,000 people with ME (approx 2000 are young people up to 25years).

Established as an Independent organisation in July 2000 we have around 1400 members (350 young people). Based in Chester le Street and open to callers, we operate Monday to Friday 9am to 5pm. A user led organisation we have a team of 4 employees directed by a management committee of 11, all people with ME or carers of people with ME.

We agree our strategic aims and prioritise our key activities in an inclusive process involving management committee, staff, volunteers and members. This is reviewed on an annual basis. We achieved the quality standard Investor in People in 2003.

We are funded in the main by grant making foundations and trusts. This requires dedicated input to submit funding bids to maintain a high quality service in a very competitive market.

We are proactive in our own fund-raising efforts. 2009 will be the fifth year taking part in the Great North Run and we encourage members to take part in fun events across the region such as cycling, abseiling, zip sliding and bungee jumping. We actively encourage and support our members and families to hold events at home or in their local area.

All of our income is directed to deliver support, help, information and understanding to people with ME their families and carers, to service providers in health, education and social services, and the general public.

To people with ME their families and carers we offer free membership, a comprehensive information pack on registration, a quarterly newsletter for adults and young people, and opportunities to join us in social get-togethers, local groups, conferences, seminars and workshops.

We offer a dedicated service for our young people and their families, working closely with Paediatricians and education welfare officers. We carry out home visits and advocate on behalf of families where required.

We are now able to provide a dedicated domiciliary service to adults with severe ME predominantly those housebound, offering a patient centred approach, enabling access to a range of services (both statutory and voluntary) to improve their quality of life and well-being.

We have played an important and active role in the development of dedicated clinical services for CFS/ME across the region. Five CFS/ME therapy teams are seeing patients in our region, in a growing number of localities to provide ease of access.

ME North East have the organisational infrastructure to gather and collate patient views from its own membership and other groups and in return disseminate information to both patients and the CFS/ME network and teams.

For more detailed information please visit the relevant pages on this site.

If you want to contact us quickly e-mail info@menortheast.org

Welcome aboard……….

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DISCLAIMER: Please note – While every effort is made to ensure accuracy of information contained on this website, this cannot be guaranteed. Any information given does not necessarily represent the views of ME North East staff or Trustees. Before embarking on anything different or new, you are advised to discuss this with your Doctor. ME North East is not responsible for any external links.